7/21/13

No more "I'm sorrys"

♫ ♪ I'm a bitch, I'm a bitch
Oh the bitch is back
Stone cold sober as a matter of fact ♪♫

I realize that I'm floating in uncharted territory here. (and although I know it's not true), I feel like I'm the first/only person in this age of social media to help their remaining parent die in the manner he has requested. I admit to making mistakes with the amount of information I've posted and more importantly with the people I've trusted with said information.

From the bottom of my black heart I'd like to thank those who have stepped up, offered support, gave me their time (and shoulder) the last year or so -- and especially the last 2 weeks. Words have not been invented to tell you how much that has meant to me. When I was falling apart & didn't know which way to turn you were there to point me in the right direction.

The last few days I've had to shut some people down because they'd insinuated themselves where they were not needed and/or wanted; and believe it or not I actually felt bad about it. Not any more. No more guilt. No more biting my tongue. I've tried to explain nicely that no matter how much time Dad has left - whether it's a week, month or a year it's his to do with as he likes. ... and it's my job (for as long as he wants me to do it) to make sure he gets what he wants as he wants it. So until further notice the bitch is unapologetically back.

7/17/13

Dallas vs LifeStation

Another interesting story in the life and times of Dallas while she's attempting to close down her Dad's life (don't you just love the third person speak :) )

While I was home I cancelled the LifeStation account  (love the product would recommend to anyone - just no need if he's going to be in the nursing home) and sent the unit, wristband and bathroom wall unit back in the same box they were sent to us in.  Today I noticed they drafted $40 out of his account, so I called to find out why.  CSR Stan told me that the box did not contain the bathroom wall button & instead of calling me to say "hey did you forget to send the button back" they just charged us for it.  Needless to say since I KNEW I put it in there. I accidently pushed the button while trying to pull it off the velcro straps from the wall & even though the main unit was unplugged from the power and phone it still lit up & attempted to call out.  I remember thinking good thing I called to cancel first b/c it would be interesting to have EMS show up at the house in the condition it was in.  


Stan put me on hold to talk to his supervisor and came back and explained that they scan everything as it comes in & the button wasn't there.  All of a sudden I remembered that I took a picture and video of the unit blinking while it was in the box - and it was still on my phone; I offered to send it to them (I did it b/c I was afraid they were going to tell me the unit didn't work anymore & I wanted to be able to prove to them that when I put it in the box it was working.).
 They've agreed to refund the $40 - although it will take 10 business days (really??).

7/14/13

“I realize now that dying is easy. Living is hard.” Gayle Forman, If I Stay

I was reminded today about something my Mom taught me (albeit the hard way) when she was getting close to the end.  We got into this huge fight when she told me she was going to stop chemo that only stopped when she yelled "It's not about what you want, it's what I want."  I mean seriously; what do you say to that?

This past week I've watched Dad deal with the realization that not only is he never going to be able to live independantly, he's "one of those people" (his words not mine) that have to have someone else wipe his ass and change his diaper.  I haven't figured out which is worse for him- that he needs them or that he did it to himself; I do believe though that he's accepted his fate.  He's not depressed, he's not giving up... he understands what the deal is ...and for now is ok with the way things are.

There is a big difference between being depressed and accepting the inevitable.  Dad asked for the DNR and the Advanced Directive on his own.  He waited to sign them until we taked about everything.  He signed them in front of two medical professionals that also had to sign off on his mental status.   So why do they keep asking him if he's changed his mind?  Why are they surprised when he gets angry that he has to keep repeating the same decisions over and over again? He even asked me one day this week "How many times do I have to tell them to let me die, not to save me?"

Tonight he asked me how far I'd gotten on the house.  I stalled for time by taking his cell phone & adding Shawn's & the lawyer's phone numbers in (he doesn't answer calls he doesn't recognize).  I took a deep breath & told him about sending things to CHKD, how long it took me to drag everything out of the truck at the e-recyling place b/c I was being careful w/ the stuff (why?!?!?), that Shawn had the extra key...yadda yadda yadda.  Not really answering his question but not really blowing him off either.  I looked up when he got unusally quiet - thinking he'd fallen asleep again only to see him attempting to wipe away a tear.  I didn't want to embarrass him so I didn't say anything - nor did he for a second or two.  "You've got people I don't even know helping me & the ones I do know only call when they want something."

"Hey now, I thought you said no crying allowed when you called Sunday."

"I'm not crying" he smiles as he finally manages to wipe it away.  "and don't you tell those clipboard women either - they already ask too many stupid questions." then he gets that sneaky smile on his face.  "What was it that Mom said about crying?"

...it took me a minute but I had to laugh.  "There's no crying in dying." No howling, boo hooing, fake snot blowing, throwing your body on the casket crap.  ...there's too much to do for any of that stuff - don't make me come back and haunt you." or something along those lines - it has been awhile you know.  :)

It was only then that I realized it has to be pretty liberating to know "what's what" so to speak.  No more what if we do this or if I don't do that... "yep" he giggles "what can they do to do to me now?  I can tell them I don't want to (re: those 'friends' asking for money) ...or even worse to ask you!"  and he starts laughing so much that... well it's not funny anymore.

Love you too Dad, love you too!

5/1/13

I'm not the bad guy; this is not my fault


Nothing like the first phone call of the day letting you know despite all my efforts there's no way I'm going to be able to stop the shit storm coming down on Dad.  It was basically a courtesy call to say the facility is applying for all of his income in order to pay for his continued residency there.  Once again the Director of Social Work ended the call by saying "if you were here...".

In a rare burst of public honesty here - as much as I love Dad I'm really tired of being the bad guy.  What would change if I could afford to be there?  Nothing.  He'd still be in a situation where he can't get out of bed by himself, he still wouldn't be able to walk & he'd still have all of his income/assets taken away against his will.  If I couldn't make him stop drinking (after 60+ years) and/or take his medicine when I was there for 9 months during his hip surgery how in the hell do you think I could change things now?!?!

That being said for those of you in my generation... start talking to your parents NOW about everything.  Don't get hit in the face with things like I did, start the conversation now.  Get those Durable POA, Medical POAs, DNRs done now.  Start putting your name on their accounts (I've been trying to cancel Cox since MARCH all the while they keep charging him) so you can take care of business when the time comes.  It doesn't matter if your 'rents aren't sick now - what if they're in a car accident? trip on the sidewalk on the way to work?  ....and for those of you with siblings - there's enough stuff to be done that it shouldn't fall on one person's shoulders.  Get over it and share the responsibilities.

And for the parents on my page - quit being so stubborn.  No one is trying to take over your life we just want to give you the life you want and deserve.  (Trust me we have enough on our plates trying to keep our worlds turning we don't need to try and control yours as well.) You're going to have to help us help you or the choices are going to be made for you.  Tell your kids (or whomever your advocate is) where the info is, who carries the policies on the house, who the mortgage is through, how things are paid, etc.

And for the younger ones on my page, your parents aren't immortal.  There will be a time when you are going to have to be the grown-up and take care of them.  Start asking questions, start paying attention.  The time may come when you will need to be their advocate & you need to be ready.  The internet is a powerful tool but you are still going to have to get on the  phone and talk to people.  Make sure you know how to talk to those that have the power to do what you need done.  Your world is not in that little box in your hands you can't take your eyes off of.

4/26/13

Being the only child of an elderly parent in poor health f'n sucks.


           Monday at 11:45 I received a voice mail message from Joyce Williams that she wanted to get Dad’s “team” together at 1 pm and go over his progress with me; she would call me again just before 1 and have everyone on speaker phone.  The problem was I didn’t get the message until 1:15 while I was on lunch during my clinicals.  I immediately called her back and wouldn’t you know it, I got her voice mail.  At first I was pissed that they conducted the meeting without me, but then it hit me there is no way they could have conducted the meeting in less than 15 minutes.  Then I was really mad; who sets up a meeting like this at the last minute without giving the family notice?  We’ve been through this stuff before over the last few years, there are protocols and calendars to organize – no one can get 3 or 4 department heads together that quickly.
Yes, I spent the last 10 minutes of my lunch leaving a very angry and nasty message on Ms. Williams’ voice mail explaining my displeasure in very loud and not so nice terms (the language was all PG-13, they do still have Dad afterall).  I just let her know that I didn’t appreciate the last minute notice on something that was so very important & I’d appreciate at least a phone call that checked my schedule as well as everyone else’s.  After my clinicals I called Kris to vent (he’s very good at listening to me vent these last few months; I’m really going to have to do something nice for him soon) and then I called Dad to find out what happened at the meeting.  “What meeting” he said.  I had a feeling he didn’t know anything about it since he hadn’t mentioned it the day before when we talked, but I also didn’t want to make it seem to him like I was keeping things away from him.  I told him about the voice mail & he was understandably upset.  Not only did they not tell him about the meeting, he had no idea they were calling me in on it without him. 
Ms. Williams called Tuesday literally 2 minutes before I was to clock in at work to let me know Dad was “very upset” and she wanted to “apologize for the short notice yesterday” and to try to schedule another meeting at my convenience.  (I didn’t know until this morning when I talked to him that he used the colorful language I didn’t on her. J )  The make-up meeting was set up for noon Wednesday.
One the call was the Director of Rehab, Nursing, and of course the facility Business Manager.  Dad was not on the call, in the room nor had anyone talked to him before they talked to me.  I was told they wanted to talk to me first (as his next of kin and holder of his power of attorney) and then they would tell him what we all discussed.  …ok so now I know Dad has not been exaggerating about being kept in the dark in the least little bit.  Great – this is not going to be a fun time for any of us.
 The director of rehab started out by telling me about Dad’s progress since he came to the facility.  It was slow going, but they were making progress; he was able to walk around 50’ with the use of a walker without really stopping to rest.  His occupational therapy was going well too; he was able to dress himself again, he did need help with the lower extremities (always has since the hip surgery so that wasn’t too much of a surprise), but they were making progress.  What derailed the progress was the fluid in his legs and abdomen that was not only holding him back physically it was causing him pain. (No joke really – he’s only been complaining about that since he ended up in the hospital – oh wait that was the major reason he WAS in the hospital!)  Since then he hasn’t even been able to get out of bed by himself or with the help of 2 aides; they are now having to use a hoya lift to get him out of bed.  He has lost all balance and is unable to stand alone.  She even made mention of the fact that he’s been complaining of pain in his wrist (the right one that has been damaged since his fall & the reason I’m having to take care of all of his bills & things). 
Then she dropped the hammer.  Per Medicare guidelines since he is no longer making any progress in his rehabilitation nor does it seem like he wants to make any progress, they are no longer able to report to Medicare (which pays 100% for the first 21 days and then 80% for days 21-100; his secondary insurance picks up the remaining 20%) that he needs continuing care.  It’s not that he’s ready to be released it’s that he’s not meeting the insurance guidelines that will allow either insurance to continue paying for his care.  Bottom line if he’s going to continue there or be release to an assisted living facility and/or nursing home it’s going to start coming out of pocket in the next two weeks or so.
The Business Manager was next on the line to reiterate what the Rehab Director stated.  They needed to start looking at Dad’s options financially… and now.  Basically I have until the end of the month, maybe until the 15th to figure out how to keep him where he is to the tune of an $8000 price tag.  She did suggest we start the Medicaid application because that does take 45 days to complete let alone find out if you’re approved.  She did “warn” me that once he’s approved (if he’s approved) they will take everything leaving him $40 a month for spending money.  The rational is that since they are paying for all his needs (room, board, and medical) he shouldn’t need any of his money for anything else.  (Which makes sense in one way – until you look at the responsibilities you have outside basic needs to survive.  And yes I said survive because if you ask me this is no way to live – no way what so ever.)  All of his income; retirement, social security and yes the rental property would go to his care and the rest would be picked up by Medicaid. 
I thought I had more time to save the old house at least, but I don’t.  I knew we were going to be cutting it close because they go back and look at your financials for the last five years but I thought I had time to sell the house and at least pay off his bills completely with the money.  I talked to the lawyer that did the POAs for a few minutes this morning.  I was hoping I would be able to move the house into my name and give me time to sell it, but he said that wasn’t going to work.  He also said that since I had POA, I didn’t need to move it, I just needed to sell it; although he did agree the faster the better.  Funny thing, he felt it would be better to sell the one he’s living in first and then the old house.  Damn I hate that idea b/c there are still some things in that house that I want.  Guess I better start figuring out how to make that trip home aye?  Anyone want to help me go through Dad’s house?  Yeah I didn't think so but can't blame a girl for asking.



4/12/13

Dad Update 4/12/13


Dad update April 12, 2013

Yesterday Dad had a paracentesis (procedure to remove abdominal fluid is removed) and today first thing in the morning he called complaining about being in pain.  J Yes I know I shouldn’t be happy about being awakened at o’dark thirty by Dad’s ringtone, but this time he gets a pass.  This was the first major procedure that he’s been through since the hip surgery that was not there for & even though in my head I knew that despite the risks it was relatively safe and routine procedure.

So far the swelling in this stomach has gone down (he says he only looks 5 months pregnant now) as well as in the right leg.  They will be testing the fluid for all the usual suspects (cancer, liver & kidney disease and heart failure).  Dad’s completely frustrated because no one will tell him why this happened other than ‘your drinking’.  …and of course I haven’t been able to convince him that 60 years of constant alcohol consumption will eventually take a toll on the body and it’s organs.  He’s still in cardiac heart failure (goes to see the cardiologist on the 16th) and kidney failure now.  Surprisingly so far *knock on wood* he hasn’t had liver damage (yes surprise I know).  We should know more once the fluid is completely drained and tested.

I'll post more when I know more. 

4/7/13

Guilty pleasure or cheap therapy?

The one thing I look forward to more than football on Sunday mornings is Postsecret.  At first I thought it was just a way to satisfy my voyeuristic side but as the years go by I've noticed that it's a way to validate my feelings of being alone - by realizing I'm not... not really.

The other night I had a dream that even now I can pretty much remember with more detail than I'm comfortable with.  The long and short of it is that everyone I know/knew was on this huge farm having a family fun day type thing.  Friends, ex- friends, ex-boyfriends, their kids, sig ots, dogs, cats... yeah I'm serious.  People I'd been friends with for decades were talking with other friends of mine that they'd never met.  It was as if it was a family reunion and everyone was glad to see everyone else.  The kids were all playing frisbee, volleyball or football together.  I remember walking from one conversation to another as my everyone talked about their common interests even though they really had no way of knowing that about each other.  It was a good feeling.

The 'scene' that still gets to me was when I needed to go for a beer run.  I jumped in McGyver (a '70 Buick Skylark that Andy gave me when I moved to NC -the favorite of all my cars) with both Bill and Dave.  We got lost going to the store but we did a lot of talking and laughing - even though as far as I know neither of those guys have ever crossed paths.  I still haven't figured out why the two people that have hurt me more than anyone on this planet would be in this last scene of the dream.  I can hear Mom whispering in one ear telling me I have unfinished business with both of them and that I need to reach out to them and deal with it.  On the other shoulder I can hear Kris telling me to walk away, it was just a dream; I can't let them hurt me again. 

So this morning when I saw this secret someone from Australia posted it made me wonder if I'm not paying attention to what the universe (as Mom used to say) is trying to tell me or am I just reaching for some fantasy I'd like to come true.  I've often wondered what I would say/do if either one of them called, sent an email or showed up at my door.  I honestly don't think I would greet them with a smile considering how things ended between us, but ... 


*sigh*... doesn't really matter does it?  They are called fantasies for a reason.